Dr. Dédé

Dr. Dédé

Pain That Cannot Be Measured

What 43 Years of Sickle Cell Has Taught Me About Who Gets Believed

Dr. Dédé Tetsubayshi's avatar
Dr. Dédé Tetsubayshi
May 16, 2026
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Photo by Fabian Møller on Unsplash

Chronic Pain & System Failure

Vaso-occlusive crisis. Inadequate treatment. Racial pain bias. And the uncomfortable reality that gene therapy is not simply a medical breakthrough, but also a reflection of how profoundly existing systems have failed people living with sickle cell disease long before this moment arrived.

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